The discussion on the WHA resolution to advance health equity for people with #hemophilia and other #BleedingDisorders is now taking place at the 79th World Health Assembly. This important moment brings global attention to the need for improved diagnosis, treatment access, and comprehensive care for people living with bleeding disorders worldwide. 🎥 Follow the session live here: https://bit.ly/4dadwMe #Equity4BleedingDisorders #WHA79
World Federation of Hemophilia / Fédération mondiale de l'hémophilie
Non-profit Organizations
Montreal, Quebec 13,623 followers
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders worldwide.
About us
For over 50 years, the World Federation of Hemophilia (WFH – www.wfh.org) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives by training experts in the field to properly diagnose and manage patients, advocating for adequate supply of safe treatment products, and educating and empowering people with bleeding disorders to help them live healthier, longer, and more productive lives The WFH has been a member of the World Health Organization since 1969 and has national member organization (NMOs) in 147 countries, as well as a network of international volunteers and healthcare providers. Depuis 50 ans, la FMH fait montre de leadership mondial pour améliorer les soins et en assurer la permanence pour les personnes atteintes d’un trouble de coagulation héréditaire, y compris l’hémophilie, la maladie de von Willebrand, les déficits en facteur de coagulation rares et les dysfonctions plaquettaires héréditaires. La Fédération mondiale de l’hémophilie (FMH) est une organisation internationale sans but lucratif qui a été fondée en 1963. Réseau mondial d’organisations de patients de 147 pays, elle est officiellement reconnue par l’Organisation mondiale de la Santé. Durante 50 años, la FMH ha brindado liderazgo a escala mundial a fin de mejorar y preservar la atención para personas con trastornos de la coagulación hereditarios, entre ellos hemofilia, enfermedad de Von Willebrand, deficiencias poco comunes de factores de la coagulación y trastornos plaquetarios hereditarios. La Federación Mundial de Hemofilia (FMH), organización internacional sin fines de lucro, fue establecida en 1963. Está formada por una red global de organizaciones de pacientes en 147 países y cuenta con el reconocimiento oficial de la Organización Mundial de la Salud (OMS).
- Website
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http://www.wfh.org
External link for World Federation of Hemophilia / Fédération mondiale de l'hémophilie
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Montreal, Quebec
- Type
- Nonprofit
- Founded
- 1963
- Specialties
- hemophilia, bleeding disorders, and von willebrand
Locations
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Primary
Get directions
1184 rue Sainte-Catherine Ouest
Bureau 500
Montreal, Quebec H3B 1K1, CA
Employees at World Federation of Hemophilia / Fédération mondiale de l'hémophilie
Updates
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Due to delays in the WHA program proceedings, the discussion on the WHA resolution to advance health equity for people with #hemophilia and other #BleedingDisorders, which is scheduled under 79th World Health Assembly #WHA79 agenda item 12.1 on non-communicable diseases, is expected to take place on Thursday, 21st May. The WFH team is participating in WHA79 sessions on-site in Geneva and will continue to closely monitor and share updates on any new developments. Stay tuned for the next WFH communication with the livestream link to follow WHA79 discussion on this resolution live. #Equity4BleedingDisorders #Hemophilia #BleedingDisorders
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Later today, WHO Member States are expected to deliberate on the adoption of the resolution on “Global action to advance health equity for people with hemophilia and other bleeding disorders” during #WHA79 lead by Armenia with co-sponsorship from twelve other Member States Earlier this year, the WHO Executive Board approved the resolution for consideration by the World Health Assembly—marking the first time hemophilia and other bleeding disorders have been formally recognized at this level within WHO discussions. This proposed resolution reflects years of advocacy and collaboration from the global community, national member organizations, healthcare providers, patients, families, and government partners working toward equitable access to diagnosis, treatment, and care worldwide. Stay tuned for next WFH communication throughout the day with the livestream link to follow WHA79 discussion on this resolution live. 🔗https://bit.ly/4dadwMe #Equity4BleedingDisorders #Hemophilia #BleedingDisorders
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🤝 Help close the gap Your $20 gift becomes $40, helping more people access diagnosis, care, and life-changing treatment. For too many, care is still out of reach. Together, we can change that. ✨ Every dollar goes twice as far. 🔗Donate: https://bit.ly/3R79exB #TreatmentForAll
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Thank you to all policy-makers, Ministries' of Health, Geneva Permanent Missions, WHO representatives, bleeding disorders advocates, expert clinicians, industry partners and international civil society actors who have joined us in Geneva for the 79th World Health Assembly Side Event: “Advancing Health Equity for Bleeding Disorders", as well as many members of our global bleeding disorders community who joined from all over the world online. 🌍 Co-Hosted by the World Federation of Hemophilia (WFH), in collaboration with the Ministry of Health of the Republic of #Armenia, Rare Diseases International, and the Swiss Haemophilia Society, and co-sponsored by the Ministries of Health and Population of #Egypt, #Nepal and #SriLanka, this event offered inspiring opening addresses and two expert panel discussions, underlying the importance of the adoption of the WHA resolution on Global Action to Advance Health Activity for People with Bleeding Disorders Worldwide. This Resolution is expected to be discussed at the 79th WHA this week, stay tuned for live updates from the WFH! #Equity4BleedingDisorders #Hemophilia #BleedingDisorders #TreatmentForAll #WHA79 #Geneva
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Join us today for the 79th World Health Assembly Side Event: “Advancing Health Equity for Bleeding Disorders.” 🌍 Co-Hosted by the World Federation of Hemophilia (WFH), in collaboration with the Ministry of Health of the Republic of #Armenia, Rare Diseases International, and the Swiss Haemophilia Society, and co-sponsored by the Ministry of Health and Population of Egypt, and the Ministry of Health and Population of #Nepal, this event brings together global experts, policymakers, healthcare providers, and advocates working to advance equitable access to care for people with bleeding disorders worldwide. 💻 Follow the livestream online: https://bit.ly/4ufUb3C #Equity4BleedingDisorders #Hemophilia #BleedingDisorders #TreatmentForAll #WHA79 #Geneva
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🩼What happens when people with #hemophilia need orthopedic surgery? This multicentre study reviews surgical outcomes using extended half-life factor therapies, supporting safer procedures and better perioperative planning. See the findings here: https://bit.ly/3Pie8qY
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The symptoms of both #hemophilia A and B are the same. Learn the signs, and how it gets diagnosed: https://bit.ly/3EAFO4H
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Double your impact. Help close the gap 🤝 Right now, every donation is matched, up to $5,000. Globally, 75% of people with hemophilia are still undiagnosed, leaving many without access to care. But change is possible. With the right support, more people can access care, live safely, and look toward the future with confidence. ✨ Your gift today will go twice as far. 🔗 Donate now: https://bit.ly/42gWqY1 #TreatmentForAll
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Health equity for people with bleeding disorders must be part of the global health agenda. 🌍 During the 79th World Health Assembly in #Geneva, the World Federation of Hemophilia (WFH), will co-host a Side Event on “Advancing Health Equity for Bleeding Disorders” together with the Ministry of Health of the Republic of #Armenia, Rare Diseases International, and the Swiss Haemophilia Society, co-sponsored by the Ministry of Health and Population of Egypt. The Side Event brings together global health leaders, policymakers, healthcare providers, and patient advocates. It will explore barriers and strategies to improve equitable access to diagnosis, treatment, and care worldwide. Held ahead of the anticipated adoption of the Member State-led WHA resolution on #hemophilia and other #BleedingDisorders, this Side Event reflects growing global momentum toward health equity for the bleeding disorders community. 📍 Geneva, Switzerland 🗓️ May 17, 2026 🎫 Join in person: https://bit.ly/48WSbVa 💻 Follow the livestream online: https://bit.ly/4ufUb3C #Equity4BleedingDisorders #Hemophilia #BleedingDisorders #TreatmentForAll #WHA79 #Geneva
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